Parents of brave Nottingham  five-year-old need to raise  £70,000 by January to help him beat cancer 

The parents of a  five-year-old  boy  from  Nottingham have raised an incredible £93,000  to give their  son  the best chance of beating cancer, however, they still need to raise a further £70,000 by January to reach their fundraising target of £163,000 for Henry to access treatment without delay.  

 

This time last year Henry was having surgery to remove his tumour and part of his liver after being diagnosed with high-risk neuroblastoma. As a result, Henry became unwell and had to spend Christmas Day and Boxing Day in hospital.

 

“It was a very weird Christmas; we tried our best to spend as much time together on the ward. That was probably the weirdest part, the family being in two halves,” says dad, Graham.

 

This Christmas after completing frontline treatment, Henry is looking forward to being able to spend Christmas at home with his mum, dad and little brother and best friend Oliver. He has also been recognised for his bravery throughout treatment and has been awarded the Nottinghamshire Live Bravery and Courage Award.

 

Henry was diagnosed with high-risk neuroblastoma, an aggressive childhood cancer, in 2019  just before his fourth birthday. Over the past  20 months Henry, affectionately known as ‘Henry the Brave’ has undergone chemotherapy, surgery, stem cell harvest, high dose chemotherapy, immunotherapy, and radiation. He completed frontline treatment in November and has recently had his end of treatment scans. His parents now face an anxious wait over Christmas for his scan results to see if Henry is cancer free. 

 

Henry’s  future is uncertain, as high-risk neuroblastoma is a particularly aggressive and complex cancer to treat.  Sadly, the disease returns in almost 50% of children and if this happens, less than one in ten will survive.  

 

It means  his parents, Graham and Rachel  are desperate for  their son to  access the Bivalent Vaccine clinical trial at the Memorial Sloan Kettering Cancer Centre in New York as soon as he finishes  frontline treatment,  which is showing real promise in reducing the chances of relapse.  They are fundraising for £163,000 to pay for  his  best chance at remaining cancer-free. The treatment is not available on the NHS.  

 

Fundraising during lockdown has been hard, daunting, and overwhelming at times. We are incredibly grateful to our supporters. Still a long way to go but we want to thank everyone who’s run, walked, cycled, baked, sung,” says Graham. 

 

The family have teamed up with the charity Solving Kids’ Cancer to help them raise the funds and access the potentially life-saving treatment by January 2021. The family have so far raised an incredible £93,000. 

 

You can support Henry’s campaign by donating   through Henry’s fundraising page or  by  texting  ‘HENRYB’ to 70085  followed by any whole amount up to £20.  

 

Nottingham Local News